First week back into the swing of things after two lovely weeks of school holidays and I now remember why I love holidays! Wow we were busy... Miss G started at her new/old school. She was there for Prep and Grade 1 and after many issues at the public school, she is back in a caring Christian environment. It has been delightful to pick up my smiley daughter who has actually enjoyed her school day. We are so very blessed with her new teacher and I know she will be an amazing role model to Miss G as she too has a close family member with health hiccups. I rarely use the word disability, to me my children are not disabled - they are very able - just have a few hiccups!
If anyone has a connection to someone with Beckwith-Wiedemann syndrome who has had these major maxillofacial works done, please let me know.